Our Mission
As the leading charity for primary sclerosing cholangitis, we provide high quality education and support through information days and online services, advocate and influence for the needs of people affected by PSC in policy development and clinical services, and define and evidence their unmet needs to shape, fund and co-produce in PSC research.
We believe people with PSC have the right to:
easily accessible, up to date and free information about PSC.
have their clinical care delivered by health professionals who understand PSC.
effective monitoring of disease progression and cancer risk.
effective symptom management options.
their psychological and emotional needs recognised and supported.
effective, curative treatment.
Our values
At the heart of our work in PSC Support is a set of core values guiding our work and how we operate:
Transparency
We are transparent and accountable to all our stakeholders.
Together we’re better
We work collaboratively with all our stakeholders to deliver the best outcomes for PSC patients.
Patient voice
Patient involvement and contribution enables patients’ voice to be heard in all aspects of our work.
Tenacity
We will never give up hope.
We will never give up our search for a cure.
At PSC Support, we believe that no one should face primary sclerosing cholangitis (PSC) alone. Our philosophy is rooted in compassion, empowerment, and hope. We provide reliable, high-quality information and support to ensure that those affected by PSC have the knowledge and resources they need to manage their condition effectively. By fostering collaboration between patients, families, and healthcare providers, we aim to enhance clinical care and improve treatment outcomes. Additionally, we are committed to advancing scientific research to better understand PSC and develop new treatments, striving towards a future where PSC no longer exists.
We take action through a comprehensive approach that includes providing information and support, collaborating with healthcare providers, and driving research and advocacy.
We offer patients and families high-quality, accessible information and a supportive community to ensure they have the knowledge and resources needed to manage primary sclerosing cholangitis (PSC).
By working closely with healthcare providers, we aim to enhance clinical care and improve treatment outcomes.
Additionally, we fund and shape critical research to better understand PSC and develop new treatments, while our advocacy efforts focus on raising awareness, influencing healthcare policies, and securing funding for research initiatives.
Through these actions, we are committed to improving the lives of those affected by PSC and striving towards a world without the disease.